Hello...
Yesterday I scheduled an appointment for her GI tube. We will be going down to Children's Hospital in Milwaukee two days before Thanksgiving to find out if Khloe is ready for this surgery. This surgery seems scary, but I think in the long run Khloe will be more comfortable with her feedings and not want to pull out her feeding tube everyday. I put the little mittens over her hands everyday, and last night I thought I could keep the mittens off. I woke up to Kurtis telling me that she pulled out her feeding tube. :( Khloe's nurse is such a sweetheart...she is so good with children, and Khloe seems to know when she is here at the house. Today Khloe's weight was 7lbs 4oz. She has lost an ounce since last week, so now the doctor is trying to figure out how she can put on some weight. I might need to add more formula to my breast milk that I pump and give her in a bottle, or I might need to give her a different kind of formula that has more calories. Typically trisomy babies have a hard time gaining weight, but I am not sure of why? Not sure if it's her metabolism or if her body just absorbs the calories? I do know that she is up to 65 ml every 2.5 hrs, and I may be able to bump her up to 70 ml once I hear from the doctor. She has been going up 5 ml every week, and the doctor and nurses have been watching how she tolerates her feedings. So far she has not spit up too much, and her little tummy is handling everything just fine. This is just a little part of the day in the life of Khloe :) My little ray of sunshine!!
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